On the last week-end of October I was back in Vienna to participate to a meeting among HIV+ women in Europe. Most countries were represented including some ex-USSR and Central Asia places (it is very very bad that I don’t remember the name of all those places…I know), Russia, Ukraine, Lithuania, Poland, Albania, Armenia, Portugal, Spain, Italy, UK, Germany were represented, and possibly a few more I can not recall right now.
So it was again a room full of women with HIV from all different parts of Europe, many languages, many experiences…but also many similarities.
One of the aims of the meeting was to start getting organized so that we can increase women’s visibility and influence at next International AIDS conference in Vienna in July 2010. We also discussed at length to identify key issues to highlight in July.
On the first day we had an overview of the different situations in different countries, and each woman made a 10 minutes presentation about what is going on an the work that they are doing there.
Needless to say the reports from Eastern Europe were quite chilling. The women from Russia were among the youngest in our group, mainly in their early twenties, but nevertheless, you could see really motivated activists. Russia has one of the fastest growing and largest HIV epidemics in Europe. The official numbers from the government are low, few hundred thousands, however WHO estimates there are over 1.000.000 people living with HIV and 38% of those are women. The women at our meeting highlighted that even if heterosexual transmission and intravenous drug use are the main routes of transmission , shockingly, some women also get infected in hospitals, because of lack of universal precautions. They also talked about the immense lack of resources, especially for women in prison, who don’t have absolutely any access neither to prevention or treatment.
Stigma and discrimination are rampant in Russia, and among the general population there is still the false perception that HIV only affects drug users and prostitutes. If the women are drug users and want to access HIV treatment they need to register as drug users and this puts them at risk to lose custody of their children. Therefore women often, get really sick and die, because trying to access medication could lead to being separated from their children.
Something that was really shocking for me is what has been happening in Albania. I know that it is one of the poorest country in the EU, but it is also really close to Italy, just a few miles across the water. I couldn’t believe the story one woman told. A mother of 4 children, 3 of them HIV+. They all got diagnosed after her husband (who had never disclosed to her) died of AIDS in 2004. Two of the children were also really sick, and nearly died because they couldn’t get treatment. I just can not believe that this was happening a few miles from Italy in 2004. This woman fought like a lioness for her and her children rights to treatment, and for once this story has an happy ending and they got their meds in the end and survived. She is now one of the heads of the movement for the rights of PLHIV in Albania.
We had about 10 hours of sharing, it was very very emotional, but also inspiring, it was amazing to learn about the resilience, courage, strength and focus of all of those women.
Some of the main outcomes of the meeting were:
- Setting up a formal network of women living with HIV in Europe and Central Asia, we are hoping to raise funds to register it in Germany. Several women from the meeting stepped up to be on a interim board of directors.
- We drafted a ‘reporting card’ which we want to use to highlight key issues and problematic areas for women in their European countries.
- We started working collecting information among young women (up to 18 years old) in the different European countries.
- We discussed and gave our inputs for a booklet on the 10 reasons why criminal transmission of HIV hurts women.
- We started organizing around setting up a Women Networking Zone in the Global Village – the area of the conference which is open to everybody (also people who can not afford the conference fee)
- My colleague SS – who also works for PW, diagnosed in prison only a few years ago, and has now evolved in a committed activist- was offered to collaborate in the writing of a plenary session for Vienna 2010 about PLHIV in prison.
Of course this is a very poor summary of the rich discussion which went on, but I hope it can give an idea of what amazing meeting it was.
This meeting wouldn’t have been possible without the tireless work of Alice Welbourn and Armandine Bollinger from the Salamander Trust, Tyler Crone from Athena Network and also without the help and warm welcome of our Vienna hosts Sabine and Wiltrut.
A full report of the meeting is available on the Salamander Trust website here: